A Few Words...

What is written here is my opinion and personal experience only. I am not qualified to give advice - medical, legal, or otherwise. Please be responsible and do your own research regarding treatments, diets, doctors, and alternative therapies.

Monday, January 26, 2015

Informative Article About Living with Vestibular Disorders

Articles portraying accurate accounts of what it is like to live with a vestibular disorder and their various causes are far and few between.  Most perpetuate misinformation or give false hope.  I thought this article did a good job of touching on the known causes of vertigo and the difficulty diagnosing and treating them.  I encourage you to use the link to go straight to the article itself as it contains an embedded video and links to other articles and stories.  Thanks to Caroline for sharing this from Canada.

Misunderstood and often misdiagnosed, the mystery of vertigoDebilitating chronic dizziness can result from viruses, sports injuries and is difficult to cure

By Meredith Levine, CBC News Posted: Oct 13, 2014 5:00 AM ET Last Updated: Oct 13, 2014 7:59 PM ET

Word went round Janice Mackay's quiet neighbourhood that she was hitting the bottle hard. She'd been seen more than once weaving along the sidewalk in front of her suburban home in Pickering, just outside Toronto, in a sad, drunken stagger.

But Mackay wasn't drunk. As it turned out, her inner ear, the body's balance centre, had been destroyed by medication when she was hospitalized for over a month back in May 2005.

At the time, Mackay was diagnosed with a life-threatening infection in one of her ovaries, and so was put on a cocktail of medication, including an IV drip of gentamicin, a well-known, inexpensive antibiotic that is one of the few that hasn't fallen prey to antibiotic-resistant bacteria.

A few weeks later, the infection was almost gone when Mackay, still hospitalized, suddenly developed the bed spins and vomiting.

Her medical team told her she'd been lying down too long and gave her Gravol, but the symptoms didn't go away.

In a follow-up appointment after her discharge, Mackay was told that the dizziness was a side effect of the gentamicin, and that she would probably have to get used to it.

But she didn't discover the extent of the damage until later when neurotologist Dr. John Rutka assessed her condition and concluded that the gentamicin had essentially destroyed her vestibular system, the body's motion detector, located deep within the inner ear.

After a lengthy legal fight, Mackay eventually settled a civil suit with the suburban hospital that treated her. But nine years later, the spinning hasn't stopped, and Mackay lives with chronic vertigo, the constant illusion of motion.

Her balance is so unstable that she's been unable to get medical clearance to return to work with the City of Toronto, to a job she loved.

A professional hazard

Gentamicin ototoxicity, or poisoning of the ear, is just one way people end up with chronic vertigo. (Though it is one of the worst in that it can damage both sides of the inner ear.)

The problem with gentamicin
In the majority of cases, vestibular damage is the result of a virus. Head injury, autoimmune disease and genetic conditions are also culprits. As are some jobs.

Vestibular problems are a professional hazard for studio sound engineers, soldiers and military trainees who are exposed to bomb blasts, as well as football and hockey players, including Sidney Crosby, who develop chronic vertigo from vestibular concussions.

Canadian astronaut Chris Hadfield said he had problems with balance and dizziness on his return to Earth. (Canadian Press)

Even space flight has been implicated. Canadian astronaut Chris Hadfield acknowledged that life back on Earth, after five months of living on the International Space Station, came with dizziness and motion disturbances.

As he told one news organization, "your eye and inner ear are telling you different things."

In the U.S., the National Institute on Deafness and other Communication Disorders estimates that around five per cent of the American population, or roughly 15 million people, suffer from chronic vestibular problems.

There is no comparable Canadian figure, but the usual rule of thumb would suggest that amounts to about 1.5 million Canadians.

A 2009 study published in the Annals of Internal Medicine suggested that 35 per cent of all people aged 40 and older will experience at least some vestibular problems.

In fact, vertigo and dizziness are two of the fastest growing health search terms on Google, according to David Pothier, an inner ear specialist and researcher at Toronto’s University Health Network.

Unfortunately, says Pothier, "vestibular patients are often not taken seriously. They're repeatedly brushed aside as making up their symptoms. But what they experience is very serious and very real."

Often misdiagnosed

The patients who make it to Dr. Pothier's clinic in Toronto have spent, on average, two years bouncing around the health-care system looking for answers before they find him.

Lisa Tanner, a former college track star from Atlanta, Ga., says she has to hold herself very still mostly to get through her daily routine, and that many doctors wanted to diagnose her with depression. (Meredith Levine/CBC)

And they are among the lucky ones. There is a pronounced shortage of inner ear specialists, in Canada, and most vestibular patients don't end up under the care of a neurotologist.

As a result, their cases are often misdiagnosed as mental illness, and many are then prescribed tranquilizers.

But tranquilizers decrease brain activity, which in turn impedes the regeneration of the vestibular system. So patients on long-term prescriptions often get worse, not better.

Lisa Tanner, a 44-year-old former college track star from Atlanta, Ga., says that most of the physicians she's consulted "wanted to put me on Valium."

See Lisa Tanner's story: 'Don't jump around too much around Mummy'
During a typical consult, Tanner says, she would be asked if she cries frequently. "I'm honest, I say yes because it's hard some days. I do want to just have a cry and then get mad."

But she also tells her doctors that she's not depressed. "I'm not happy about this, but I do want to get better."

Piecing together clues

Diagnosing the cause of dizziness and balance problems is notoriously difficult.

The vestibular system is really just a string of microscopic hairs at the end of cells, inaccessibly encased in bone, beyond the reach of biopsy or current imaging technology.

Accurate diagnosis requires both specialized equipment, which many health-care institutions lack, and specialists willing to invest inordinate amounts of time puzzling over patient charts and test results.

Janice Mackay, left, talks with Dr. John Rutka, right, head of neurotology at the University Health Network in Toronto and the specialist who finally diagnosed her problem. (Meredith Levine/CBC)

"You have to be like Sherlock Holmes," says Dr. Rutka. "You have to put all the pieces together, find all the clues."

Rutka, a leading international researcher and head of neurotology at the University Health network in Toronto, is the specialist who finally diagnosed Janice Mackay's problem.

For him, one of the rewards of his work is being able to tell these patients, "You're not crazy, you're not psychotic, you're not nuts. Forget what other doctors have told you."

The link to anxiety

But while patients with chronic vertigo are certainly not crazy, there is a complex and fascinating biological link between damage to the vestibular system and the development of anxiety disorders.

Ancient Greek medical texts noted the connection first, but a few millennia on we have yet to fully decode the brain circuitry that connects the two.

"It is difficult to prove, it's difficult to show. But I think it's almost certainly something that's there," says Dr. Pothier.

David Pothier
Inner ear specialist Dr. David Pothier at Toronto's University Health Network says a big problem for vestibular patients is that their complaints are often not taken seriously. (Meredith Levine/CBC)

"When you want to comfort a child, you rock the child. When someone is upset, you rock them gently. People who are under extreme mental pressure often rock themselves."

If there is some kind of biological connection between movement and mood calming, then when the vestibular system — our internal motion sensor — is on the fritz, mood, it would follow, would also likely be affected.

What has been proven is that serotonin receptors, which play a role in mood regulation, exist in the vestibular system, and that there is some link between serotonin levels and vestibular regulation, according to the University of Pittsburgh's Dr. Carey Balaban, a leading researcher in this area.

"If you don't trust your balance system, anxiety is a natural protective process," he explains.

Vestibular patients' blogs and online groups are filled with discussion of anxiety and depression, especially, it seems, when there is little to alleviate the symptoms and patients are sometimes dismissed as fakers.

Joni Church, a 36-year-old video editor in Winnipeg, suddenly developed vertigo six years ago, the cause unknown , and describes struggling with "an inner despair where I felt like my life as I knew it was gone.

"The future for me was just sickness and the inability to do everything I love."

Most chronic vestibular disorders don't respond to medication, and there is currently no way to regenerate inner ear cells, though scientists are working on it.

Joni Church
Winnipegger Joni Church has recovered enough to return to work as a video editor. But it's a tough job for someone with a tendency to vertigo. (Meredith Levine/CBC)

About two-thirds of chronic vestibular patients do improve, although most will never be completely symptom free.

Essentially, these people learn through experience, and through rehab and behavioural therapy, to function as much as possible even when dizzy or off-balance.

Joni Church has recovered enough to return to work as a video editor, but it's a tough job for someone with a tendency to vertigo.

"It does make me a bit ill sometimes," she concedes, but she loves the work so she adapts her life around the condition.

Because her vestibular system has remained faulty, though, Church has been forced to relinquish a second passion: boxing. She was training for her first competitive fight when she became ill.

Next: Rehab, the latest techniques for dealing with chronic vertigo

Saturday, January 17, 2015

Hearing Aids and Balance

Another long absence between posts, sorry, but it just means I've been well and with not too much new to report.  I'm still stable on my current treatment.  But an article I read today prompted me to write this post.

As most of you know, I am a huge fan of my hearing aid (HA).  Based on my own experience and the experiences others have related to me, it seems those of us with Meniere's-related hearing loss tend to be discouraged from getting an HA.  I suspect this is probably not based on any good evidence that HAs have been proven NOT to be beneficial, but more likely on the lack of evidence that they are.  Just about everything I've read or been told on the subject has only been anecdotal.

Understandably, our hearing often does fluctuate, making it a challenge to get and keep the HA properly adjusted.  Also, HAs are expensive so it might seem a waste of money if there's little reason to think it's going to significantly improve one's quality of life,  But in speaking with others with Meniere's disease who have tried an HA and also on what my doctors have said, I'd beg to differ.  The idea that an HA might not be effective for us seems to be based on (1) unrealistic expectations of how an HA can help in ways other than perfecting our hearing (it won't) and (2) not giving the brain enough time to adjust to the HA (in my case, it seemed to take 6-8 weeks for my brain to really rewire and adjust to processing and interpreting sound again).

Anyway, here's an article reporting on a small study which found that HAs might actually improve balance function in people with hearing loss.  After adjusting to my HA, I definitely felt it helped with my balance, as well as echolocation and reducing mental fatigue from straining to hear and process all the sound around me all the time.  I hope more work is done in this area to validate that HAs may do more than just amplify sound for those of us with Meniere's.

Do Hearing Aids Improve Balance?
By Alan Desmond On January 13, 2015 ·

A couple of years ago, I published a post on this blog about a study connecting hearing loss with increased risk of falls. My angle in the post was “Maybe there is a connection, maybe there isn’t, but what should we do with this information?”

Researchers at Washington University of St. Louis decided to investigate whether balance could be improved by treating those with hearing loss with hearing aids. They were specifically interested in whether hearing (in addition to vestibular, visual and proprioceptive) feedback contributed to improved performance on simple balance function testing.

Patients underwent two simple balance tests: the Romberg (eyes closed on foam) and tandem stance (heel to toe) with eyes closed. Throughout the test period, the patients were provided with what is described as “a point-source broadband white-noise sound (0–4 kHz).” Balance was assessed both with and without hearing aids in place.

The study did show that balance performance was improved, both objectively and subjectively, when hearing aid wearers had their hearing aids on and functioning. As noted by the authors “This is a small study. Obviously it needs to be repeated in a much larger study, and we’re seeking funding to do that.”

This is interesting on many levels: It helps support the idea of an association between hearing loss and increased fall risk, and it adds one more potential treatment option in the battle to reduce falls in the elderly. It will be more interesting to see where this research takes us.