Wanted to take a minute to share a couple of neat tools that showed up in this week.
The first is a thought-provoking questionnaire to help assess dizziness which can be found here. Check it out!
The second is a super-neat, comprehensive, fillable form for tracking Meniere's developed bn blogger, Glenn, over at Mind Over Menieres. I could post the pdf, but I imagine Glenn would like to generate some traffic to his site and it's well-worth putting an email address in to get this cool tool.
Thank you for the new tools. I asked for the download from Glenn.
ReplyDeleteJust one problem from the dizziness questionnaire. it says to pick only one..stresses this. I have the top 4 of those, so picking only one kinda messes things up. That's been kind of a bit problem with me, they have tried to pigeon home me into one diagnosis....Meniere's disease, but I don't have just Meniere's disease. Now they aren't even sure I just have the Meniere's, BPPV, Vestibular Migraines, and Orthostatic Hypertension.
BPPV is relatively new, at least the diagnosis is who knows how long I've had it on a minor level it just hit me with a major attack in March, and Orthostatic Hypertension is very new, it may be caused by a medication, but I've been on the medication for years??? I just don't know yet, and each doctor seems to think it is another doctor's responsibility. I go to a new specialist next week. We'll see.
Again, thanks for the tools.
I hear you, Wendy. I bet people in the advanced stages of Meniere's (or whatever) experience several different types of vestibular disturbances, but maybe less so early in the disease?
DeleteYes Angela, I don't think I had so many different types of vestibular diseases early with Meniere's, at least I didn't have as many harsh symptoms. I didn't have BPPV I know. Vestibular Migraines I may have had the whole time, may have even had them before I was diagnosed with Meniere's. I've had trouble with my balance and dizziness since I was in high school, just not severe vertigo. I remember being on antivert on and off for many years. So who knows what I had long before I was diagnosed with Meniere's. I grew up in a very rural area. I was told they thought I was had been bitten by a spider or something and it caused my balance problems.
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Lol, Wendy! I love how spider bites, along with viruses, are the answer to all unexplained symptoms. But it's no laughing matter when it's so severel
DeleteTell me about it Angelea! I haven't been able to stand up in the dark...couldn't tell up from down...since high school. And this spider did it. I never even saw a spider or any sign of a bite from it. I did have very severe ear infections, was even hospitalized because antibiotics by mouth stopped working and they had to give them to me intravenously. I only remember one ear infection as a small child, but I had soooo many as a teen. My ear drum use to burst. But they say that has nothing to do with what I have. I do wonder if...no when....I get to go to John Hopkins if they will say that those infections had nothing to do with it. eh....one day at a time.
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